In Jan 2013 my life-partner and soul mate, Suzie, was diagnosed with MSA (Multiple System Atrophy), a rare, incurable Neurological illness. Only days earlier she had also been diagnosed with an equally rare cancer. Our lives were devastated and changed forever. But, through prayer and faith, we faced one day at a time, and I continue to do so without her. My desire is to offer insight, information, hope and encouragement to other people who face their own life changing illnesses or bereavement.
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Wednesday, 7 August 2013
Caring for the Carers
First of all, for those of you who have been concerned about Suzie after my recent posts, I'm pleased to report that her 'additional' symptoms seem to have abated. She's now right back to 'normal' (other MSA sufferers will know what that means!!) and we have put this latest episode down to a reaction to one of her medications which she has now stopped taking. She had a blood test yesterday and we have to see the Oncologist at the Hospital on Thursday to discuss the results. We are hoping and praying that the CA-125 marker will be back to normal, which will indicate that the cancer is under control.
We've been out and about again a few times recently, which has been good, especially for Suzie. She finds it so hard to cope with the boredom that comes with being unable to do all of the hobbies she used to do. She's just not a 'sitting around' sort of person!
Meanwhile, in my 'spare time' (!!) I've been setting up a new support web page where Caregivers and their loved ones can find encouragement, friendship and hope. We all need to know we're not alone. If you're a Facebook user please 'Like' and share this valuable means of support which focusses on upholding those who are caring for loved ones with any kind of on-going illness:
Sharing your life with someone who has a progressively debilitating terminal illness can be a very lonely experience. You can only watch helplessly as your former life gradually disintegrates and gets eroded away by the relentless caring activities and the ever increasing challenges that the illness presents every minute of every day. Caring for Suzie is something I do gladly and willingly out of devotion and love for her, and I don't begrudge her a single moment of it, but sometimes just being able to say 'Hi' to someone else who may be facing similar challenges can make all the difference. Those of you who know me well will know that I find it very difficult to go out and socialise, but that doesn't mean that I don't feel the sense of isolation. Having people online with whom I can exchange messages and share mutual experiences is such a great help both to me and to them. The most wonderful and heartwarming feeling of all is when someone tells me that something I said helped them and made all the difference to their day. That really is a most uplifting feeling.
I may never get to meet most of these friends face to face, but I promise one thing to you all.... I will pray for anyone who interacts with my support page, my blog or any other of the places where we 'meet'. God knows the needs of each and every one of us, and I will make it my commitment to bring your names before Him in my own private prayers. May He bless you.
Jesus said "Come to me, all of you who are weary and carry heavy burdens, and I will give you rest." (Matthew 11v.28)